LILAH is a gorgeous, lively seven-year-old who loves to sing, adores Peppa Pig and every day defies the odds given to her before she was even born.
Lilah was born with Myelomeningocele, which is the most severe form of Spina Bifida. This birth defect is where the neural tube in the spine fails to close. It causes weakness, loss of feeling, trouble moving, problems with the bladder, too much spinal fluid in the brain and problems with how the brain is formed.
Recently, Lilah has told her mother Kirsten Stone-Parr of her dreams to walk like other kids and every year her Christmas wish is to kick a footy or ride a scooter. We as a community have the ability to make her dreams come true.
Active rehab is a family-owned business located in Victoria. They are selling a mobility device that is changing kids’ lives. The Firefly Upsee is an upright mobility device designed to allow children to stand and move with the help of an adult.
“Lilah is simply perfect, she has a mind of her own and is achieving more than we could ever imagine. NDIS Support Services are unable to fund this for us this year as Lilah desperately needs some other equipment. This mobility device will change her life, not only will she be able to walk she will be able to ride a scooter or kick a footy. Her dreams could become a reality,” said mother, Kirsten.
For more information and to contribute to helping Lilah’s dream come true, head to gofundme.com and search for ‘Help achieve Lilah’s wish to kick a ball’.
